See also section "Charities and Foundations".
National Autism Hotline, (304) 523-8269, provided by the Autism
Services Center, 101 Richmond Street, Huntington, WV 25702.
Annual Autism Conference by Autism Society of America, July
of each year. Intended for parents, researchers, psychologists,
and educators.
ASA fax-on-demand service for autism documents. Call 1-800-FAX-0899,
24 hours a day, 7 days a week. Have your fax number handy and you
can request a list of the available documents, which includes a copy
of the Autism Society of North Carolina Book Store List. The flyer
reports that the service is provided, in part, by a grant from the
American Speech-Language-Hearing Association.
TEACCH (Treatment and Education of Autistic and Related
Communication Handicapped Children) program in North Carolina.
Division TEACCH Administration and Research
CB# 7180, 310 Medical School Wing E
The University of North Carolina at Chapel Hill
Chapel Hill, NC 27599-7180
919-966-2173
FAX 919-966-4127
Email: teacch@unc.edu
http://www.unc.edu/depts/teacch
DEAL (Dignity through Education and Language Communication
Center) Melbourne, Australia. Pioneered facilitated communications.
[others?]
Facilitated Communication Institute.
Facilitated Communication Institute
Syracuse University
370 Huntington Hall
Syracuse, NY 13244-2340
(315)443-9657
FAX (315)443-2274
Email: fcstaff@sued.syr.edu
http://soeweb.syr.edu/thefci/
Sibling Information Network - an organization for siblings of children
in special education. They publish a newsletter and coordinate pen pals.
Not specifically for autism.
Sibling Information Network
The A.J. Pappanikou Center on Special Education & Rehabilitation
991 Main Street
East Hartford, CT 06108
(203) 282-7050
Autism Research Institute (ARI)
4182 Adams Avenue
San Diego, CA 921161
http://www.autism.com/ari/
Autism Directory Service; 19 Mark Vincent Drive, Poughkeepsie, NY 12603.
May Institute/The May Center for Early Childhood Education - a
program targeting preschool through about 1st or 2nd grade kids with
autistic spectrum disorders. The teaching method is discrete-trial
like Lovaas.
The May Center
10 Acton St.
Arlington MA 02174
1-617-648-9260
Irlen Institute for Perceptual and Learning Development
5380 Village Rd.
Long Beach, CA 90808
(310) 496-2550
Fax: (310) 429-8699
The Option Institute and Fellowship. Organization in Sheffield MA,
for autistic and other special-needs children formed by Barry Neil
Kaufman, author of "Son-Rise".
http://www.option.org/
happiness@option.org
(specifically for Sun-Rise program: sonrise@option.org)
Special Olympics - open to participants ("athletes") with
developmental disabilities including autism. National number is
(202) 628-3630.
Autism News Service (ANS) - an article exchange/syndication service
for autism-related newsletters. Anyone who is involved in producing
a newsletter, or who has an article they would like to submit, is
welcome to email Trogrann@AOL.COM (Mark Painter).
National Alliance for Autism Research (NAAR) - founded in 1994 by a
group of parents of autistic children who were frustrated by the
absence of any organization dedicated to supporting and encouraging
biomedical research into autism and related disorders. It is a
non-profit organization that is governed by parents and whose sole
mission is to increase the level of medical research into the
causes, prevention and treatment of autism. They publish a
newsletter called NAARATIVE.
66 Witherspool Street, Suite 310
Princeton, New Jersey 08542
(908) 359-9957
105365.3022@compuserve.com
http://www.naar.org
CELIAC e-mail mailing list [important note: MAELSTROM.STJOHNS.EDU
is scheduled to retire 2/1/2006: I don't have information about
a new location for this list]
Old information: The Celiac discussion group is an open,
unmoderated discussion list for those interested in Celiac Disease,
dermatitis herpetiformis, gluten intolerance, wheat allergy, and
co-incident intolerances, such as casein or lactose intolerance.
The discussions will include the latest scientific research (written
for the lay person); information on what food is gluten free and
what is not; tips on how to eat out of the house, how to cope
issues, including coping with the developmental delays and
behavioral changes sometimes brought on or aggravated by gluten
(Autism, Asperger's, Attention Deficit, etc.); recipes and tips on
how to cook; and where to find gluten free food by mail order. To
subscribe, send the following command in the body of email to
LISTSERV@MAELSTROM.STJOHNS.EDU on the Internet: SUB CELIAC
yourfirstname yourlastname. For example: SUB CELIAC John Doe
There are also online archives and files available from
LISTSERV@MAELSTROM.STJOHNS.EDU.
Indiana Resource Center for Autism (IRCA) - among other things they sell
some videos about autism.
Indiana Resource Center for Autism
Indiana University
Institute for Study of Developmental Disabilities
2853 East Tenth St.
Bloomington, IN 47408-2601
1-812-855-6508
http://www.isdd.indiana.edu/~irca/
The HANDLE Institute - "Holistic Approach to Neuro-Developmental and
Learning Efficiency". Organization dedicated to non-drug approaches
to a number of neurological disorders including autism.
The HANDLE Institute
1219 Westlake Avenue North Suite 203
Seattle, Washington 98109
1-206-285-5498
FAX: 1-2060285-3228
support@handle.org
http://www.handle.org/
ME-List - a private mailing list which provides a forum for
discussion of discrete-trial-based interventions (also referred to
as "behavior modification" and as "Lovaas" therapy) for autism and
related disorders. To subscribe to this list, send a short note to
Ruth Allen at rallen@iupui.edu
giving your specific reason for interest in this topic. If you
have web access, check the website for more specific instructions:
http://php.iupui.edu/~rallen/mlfaq.html
Compuserve:
1. Autism is discussed in the ADD Forum, select GO ADD
2. For current Bulletin Board discussion:
Under topics, select Autism/TS/NBDs
3. For reference articles,
Under Libary select Autism/TS/NBDs
4. A Live discussion is held Wednesdays from 10PM to 11PM
Eastern Time in conference room 2.
America OnLine:
1. The "Equal Access Cafe"/Autism discussion group:Thursdays at 9pm
EST (keyword:disAbility then choose Equal Access Cafe). These
sessions are later available as text documents.
2. disABILITIES Message Center/Mental Health Issues & Concerns:
Browse the folders and choose "Autism" to read posted messages
and discussions from members or to ask/answer questions of others
AOL members.
3. Better Health & Medical Forum (Keyword:Health)/Health Libraries
has some articles on autism and plenty of information on
disabilities and advocacy.
4. The "Equal Access Cafe"/Asperger's discussion group:Thursdays
at 10PM EST (keyword:disAbility then choose Equal Access Cafe).
5. Asperger Folder - Go EDUCATION, Parent's Information Network,
scroll to Special Education, message boards, keep scrolling until
you find it --folders aren't in alphabetical order.
Prodigy:
I've heard ther eis a discussion on Autism at 10PM on
Tuesdays.
IRC:
I've heard there is a discussion on Autism nightly about 10PM
on #autism. There is a home page for participants at
http://www.connect.net/sherman/access.html
There is also a group of autistic people who chat online on
the channel #autistics.
There is also an IRC channel called #aba of people discussing
Applied Behavioral Analysis. There is a home page for
participants at
http://www.geocities.com/Heartland/Plains/1648/
ASPERGER mailing list
(provided by ICORS, formerly provided by St. Johns University)
Instructions for joining, etc, at
ABA-PRO e-mail mailing list [important note: MAELSTROM.STJOHNS.EDU
is scheduled to retire 2/1/2006: I don't have information about
a new location for this list]
Old information: at LISTSERV@MAELSTROM.STJOHNS.EDU
PAN-L mailing list (Parents and Autistics Network List) is a mutual
support e-mail mailing list of autistic people and parents of
autistic people. To find out how to join, send a note to Carolyn
Baird at cas@boronia.apana.org.au
OzAutism mailing list (Australia and New Zealand)
List owner is Carolyn Baird at cas@boronia.apana.org.au
THE HANEN EARLY LANGUAGE PROGRAM___________Helping Children Communicate
252 Bloor St W, Ste 3-390, Toronto, ON. Canada. M5S 1V5
Tel: (416) 921-1073 Fax: (416) 921-1225
E-mail: info@hanen.org World Wide Web: http://www.hanen.org
COSAC- the New Jersey Center for Outreach and Services for the Autism
Community at 1450 Parkside Avenue, Suite 22, Ewing, NJ 08638; (609)
883-8100. COSAC just published a National Directory of Programs
Serving Individuals With Autism and Related Pervasive Developmental
Disorders this past December. It is available for $5.00 and
contains a wealth of information that may be helpful to you.
e-mail: njautism@aol.com
http://members.aol.com/njautism
Community Support Services - Job placement organization specializing
with autism-vocational placement; director is Susan Carlton Ingram.
Community Support Services
4424 Montgomery Avenue, Suite 201
Bethesda, MD 20814
301-907-8919
Autism Treatment Options, Inc. (ATO): a non-profit organization
established in August, 1994 by a group of parents of autistic
children who were frustrated over the lack of available options for
the treatment of autism in North and South Carolina. ATO publishes
the "Autism Options Guide - Resource Handbook" which lists available
resources in the field of autism for use by parents or other persons
as a starting point for their search for the most appropriate
treatment method(s).
Autism Treatment Options, Inc. 13 Mountain Lake Drive,
Hendersonville, NC 28739
Autism Services Association: a resource for adults.
47 Walnut Street
Wellesley Hills, MA 02181
617-237-0272
Fax 617/237-5020
e-mail: AUTISMASA@AOL.COM
Cure Autism Now (CAN): Organization dedicated to funding research
with direct clinical implications for treatment.
5225 Wilshire Blvd., Suite 503
Los Angeles, California 90036
phone: (213) 549-0500
fax: (213) 549-0547
e-mail: CAN@primenet.com
http://www.canfoundation.org/
PREACCH: a national, Christian support group for people homeschooling
autistic kids. Memberships are $15/year and scholarships are
available.
PREACCH
P.O. Box 736
Lake Hamilton
FL 33851
e-mail: BondingPl@aol.com
http://bondingplace.com/preacch/
Future Horizons (was Future Education)
Publisher that specializes in books on Autism/PDD.
Future Horizons
422 E. Lamar, Suite 106
Arlington, Texas 76011
1-800-489-0727
info@futurehorizons-autism.com
http://www.futurehorizons-autism.com
Reaching Potentials: private, non provit organization established by
a small group of parents dedicated to supporting a broad spectrum of
services to individuals with autism and their families.
305-370-3324
407-852-0251
http://www.gate.net/~fnd/autism/
AUTINET FORUM. An electronic mailing list aimed to be a point of
unity between Autistic/Asperger's people, their parents, caregivers,
assistants, friends, psychiatrists, psychologists, and researchers
in the field. Run by Peter Wise (pw@shannon.tellabs.com)
http://www.iol.ie/~wise/autinet/
DAP ? The DE School ?
302-454-2202
Walden ?
Autism Treatment Services of Canada
404- 94 Ave SE,
Calgary, Alberta, Canada
T2J0E8
phone: 403-253-6961
fax: 403-253-6974
e-mail: atsc@autism.ca
http://www.autism.ca/
Autism Research Unit at University of Sunderland, England
Operates a computerized database of research publications into
all aspects of autism.
Tomatis Americas Network
http://www.tomatis.com/
Delaware Autistic Program
Statewide program, also developer of PECS.
142 Brennen Drive
Newark, DE 19713
(302) 454-2202
daprog@dca.net
http://www.dca.net/daprog/
Free Online Advocacy for Autistic Children, funded by The Office of
Advocacy for Autistic Children, a non-profit advocacy and lobbyist
group. The online service is run by Mike Robinson.
P.O. Box 4030
Ione, CA 95640
(209)763-5950 ext. 51
Mike51@sprynet.com
Candida Wellness Center
1-800-644-1612
Has catalog
Family Resource Services, Inc.
Sells books & items on autism & developmental delay; has catalog
P.O. Box 1146
231 Columbia Road 61
Magnolia, AR 71753
1-800-501-0139 (Usa)
1-501-234-9025
Fax: 1-501-234-9021
dtudor@frs-inc.com
USA Higashi - school for autistic chilren in Boston.
Potential Unlimited Publishing (PUP)
Non-profit publisher of books on autism.
P.O. Box 218
Stratham, NY 03885-0218
http://svpal1.unh.edu/PUP
Defeat Autism Now! (DAN!)
Occasional autism-related conference oriented towards medical
intervention into autism. The first conference was in January 1995,
and I think as of 6/97 that there has been one more. They resulted
in a book known as The DAN Protocol, or orignially,
Clinical Assessment Options for Children with Autism and Related
Disorders (see section on books below).
AUTISM-PHYSIO e-mail mailing list [important note:
MAELSTROM.STJOHNS.EDU is scheduled to retire 2/1/2006:
I don't have information about a new location for this list,
and haven't confirmed that the list still exists]
Old information: - for sharing information and
discussing various physiological/metabolic/genetic theories about
autism and possible interventions based upon these theories. To
subscribe, send the following command in the body of email to
LISTSERV@MAELSTROM.STJOHNS.EDU on the Internet: SUB AUTISM-PHYSIO
yourfirstname yourlastname. For example:
SUB AUTISM-PHYSIO John Doe
There are also online archives available from
LISTSERV@MAELSTROM.STJOHNS.EDU.
AUTISM-SUPPORT e-mail mailing list, a Christian online support group
formerly know as Christian Parents of Autistic Children (CPAC).
To join, send e-mail to squeakpal@aol.com.
The alt.support.autism unmoderated newsgroup.
The Autism Network for Dietary Intervention (ANDI)
Publishes The ANDI News
http://www.autismndi.com/
The Doug Flutie, Jr. Foundation for Autism
http://www.dougflutie.org/
The Autism Research Foundation (TARF)
Dedicated to the study of the neuropathoology of autism.
Suite W701, Moss-Rosene Lab
715 Albany Street
Boston, MA 02118
(617)414-5286
tarf@ladders.org
http://ladders.org/tarf/
Open Your Eyes, an initiative of
Unlocking Autism
PP.O. Box 1086
Baton Rouge, LA 70821-1086
Phone: (877) 769-6736
FEATNews Online (FEAT Daily Online Newsletter)
News bulletin on Autism e-mailed twice daily, by FEAT.
http://www.feat.org/FEATNews/
Collaborative Autism Project (CAP)
Collaboration between several research centers on autism and gentics.
http://www.autismgeneticresearch.org/
Autism Support and Advocacy Project (ASAP)
151 Portsmouth Ave
Stratham, NH
Phone: 603-778-6008
info@pup-asap.com
http://www.pup-asap.com/asap.htm